NHS Restarts Care.Data: Patient Data Collection Resumes This Autumn
The NHS is set to restart its care.data programme this autumn, aiming to collect and share patient data from hospitals and, for the first time, general practitioners (GPs). The initiative, previously postponed, has sparked debate over privacy and consent.
NHS plans to launch a pilot at 265 GP practices nationwide, integrating anonymous data into its centralised database. This move is designed to aid medical research, inform funding decisions, and prevent fraud. However, critics argue that the current opt-out approach is insufficient and advocate for an opt-in system.
The NHS has denied claims that patient data will be sold to insurance companies. Instead, it aims to improve care through data analysis. To boost participation, NHS has suggested incentivising GPs to inform patients about the benefits of care.data. Previously, NHS actively marketed the programme through over 150 local and regional events.
The Ada Lovelace Institute, a group opposing the current approach, has called for an opt-in system, citing privacy concerns. NHS, however, believes an opt-in approach would be inefficient and costly, potentially leading to fewer participants.
NHS is committed to restarting care.data, aiming to enhance patient care through data analysis. Despite criticism, NHS maintains that patient data will not be sold and assures that the programme is designed to benefit the public. As the pilot begins this fall, NHS continues to engage with the public and consider ways to boost participation.
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